BVVL International was founded as an aid to anyone interested in uncovering the mystery of Brown-Vialetto-Van Laere syndrome and ultimately,
in finding a cure.


This is an article about Pavani, who at the time was a beautiful thirteen-year-old girl in Sri Lanka recently diagnosed with BVVL. 

In Sri Lanka they do not issue portable ventilators, meaning patients like Pavani will have to live the short duration of their precious lives in a hospital.