BVVL International was founded as an aid to anyone interested in uncovering the mystery of Brown-Vialetto-Van Laere syndrome and ultimately,
in finding a cure.

Kayla, on the right, with her Big Sis and cousin

Kayla's First Birthday


Chris's Mom signing "I love you" to him

With Mom for a Princess Halloween

Cruising the Internet


Nine-year-old Kayla was born a beautiful, healthy little girl, but in August of 2005, at the age of five, her first symptoms of BVVL started. Now, she is fighting every day to maintain her mobility, her smile and her determination to keep going despite the arduous tasks that for the rest of us are a mundane part of our everyday maneuvering through the web. Kayla uses her feet to click the mouse, as her upper body is now paralyzed. Her determination is full of innocent, patient wonder and hope...for a cure

May 2005, two weeks before symptoms begin

A Hippie Halloween