BVVL International is a project of the Thisbe and Noah Scott Foundation, Inc. For more information, contact the Executive Director, Lindsay Ballew, at

It is the mission of the Thisbe and Noah Scott Foundation, Inc. to save lives by promoting research, awareness and support for children and families affected by pediatric neuromuscular diseases.

Please visit our main web site at

BVVL International was founded as an aid to anyone interested in uncovering the mystery of Brown-Vialetto-Van Laere syndrome and ultimately,
in finding a cure.

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