Signing "I love you" to Mom
Chris on the right with his older brother
Chris being silly
Chris in the bath
To the right is a picture Christopher's mother took of him in October 2008.
Every day for him took more courage than any of us could ever imagine.
Reading letters in the hospital
Christopher was born a healthy, vibrant boy on July 5, 1989 - until he was 12. In February of 2002, after a sudden onslaught of debilitating symptoms, he was diagnosed with BVVL.
Chris died in 2011, after waiting nearly a decade for a treatment.
Chris's Mom signing "I love you" to him