BVVL International was founded as an aid to anyone interested in uncovering the mystery of Brown-Vialetto-Van Laere syndrome and ultimately,
in finding a cure.

Brooke  Allen, MD
Roaring Fork Neurology
Mountain Neurological Research Center
Basalt, CO, USA

John Bodensteiner, MD
Barrow Neurological Institute
St. Joseph's Children's Health Center
Phoenix, Arizona, USA

Dr. Annet Bosch, University of Amsterdam, Amsterdam, The Netherlands

Dr. Henry Houlden, MRC Centre for Neuromuscular Diseases, UCL Institute of Neurology, Queen Square, London, UK

Sivakumar Sathasivam, PhD
The Walton Centre for Neurology and Neurosurgery
NHS Trust, Liverpool, UK

Sharon F. Terry, MA
President & CEO, Genetic Alliance
Executive Director, PXE International
Washington, D.C., USA

BVVL International is a project of the Thisbe and Noah Scott Foundation - a 501c(3) organization located in Nashville, Tennessee.

For more information, please contact us at

About Us