BVVL
International was founded as an aid to anyone interested in uncovering
the mystery of Brown-Vialetto-Van Laere syndrome and ultimately,
in finding a cure.
in finding a cure.
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Christopher
Christopher was born a healthy, vibrant boy on
July 5, 1989 - until he was 12. In February of 2002, after a sudden
onslaught of debilitating symptoms, he was diagnosed with BVVL.
He is still fighting every day for his life...waiting for a treatment.
He is still fighting every day for his life...waiting for a treatment.
Chris in the bath
Playing tee-ball
Reading letters in the hospital
To the right is a picture Christopher's mother took of him in October 2008.
Every day for him takes more courage than any of us could ever imagine.
Chris being silly
Chris on the right with his older brother
Signing "I love you" to Mom
Chris's Mom signing "I love you" to him
