BVVL International was founded as an aid to anyone interested in uncovering the mystery of Brown-Vialetto-Van Laere syndrome and ultimately,
in finding a cure.

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Pavani

Pavani, a beautiful thirteen-year-old girl in Sri Lanka, has recently been diagnosed with BVVL. Because she has developed trouble with her breathing, she needs a portable ventilator in order to leave the hospital and go home with her family. Her friends and family are currently raising money to buy the ventilator. If you are interested in helping them, please contact us at info@bvvlinternational.org