BVVL International was founded as an aid to anyone interested in uncovering the mystery of Brown-Vialetto-Van Laere syndrome and ultimately,
in finding a cure.
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About Us
ADVISORY BOARD:

Brooke B. Allen, MD
Department of Neurology
University of Colorado Health Sciences Center
Denver, CO, USA

John Bodensteiner, MD
Barrow Neurological Institute
St. Joseph's Children's Health Center
Phoenix, Arizona, USA

Fathi Dakhil, MD
Department of Neurology
Jamhouriya Hospital
Benghazi, Libya    

Sivakumar Sathasivam, PhD
The Walton Centre for Neurology and Neurosurgery
NHS Trust, Liverpool, UK

Sharon F. Terry, MA
President & CEO, Genetic Alliance
Executive Director, PXE International
Washington, D.C., USA


BVVL International is a project of The Olive Branch Fund: A Thisbe and Noah Scott Legacy, which is a component fund of The Community Foundation of Middle Tennessee - a 501c(3) organization located in Nashville, Tennessee.

For more information, please contact us at info@bvvlinternational.org.